Saturday, May 28, 2011

Unexpected Rant

My Mom, and Gary really wanted Aviana to go back to physical therapy. We thought about it for a few months, and then decided, at this point, it couldn't hurt.  They take her to every appointment, and I thank them, so very much!!  I took her this past Friday though, and wanted to share some pictures with you! 

Aviana really likes Erin, her physical therapist. So, I called her to see if we could come back. She said we could, but on a trial basis. The trial is between 4-6 weeks, with her going...are you ready for to two times a week for 30-45 minute sessions. 

It is really hard for kids like Aviana to meet the goals set by Kaiser, so I wouldn't be surprised if she is released at the end of the trial.

All of the above, is why I am so thankful for The Institute Program. I feel we have the power to make sure our child is getting the BEST chance of recovery. With The Institutes, my hands are untied, and I don't have to fight tooth, and nail for every tiny, little ounce of therapy.

Like I said, Aviana will probably not meet the goals set by Kaiser, and I mean Kaiser, not Erin. So, while  they are not really interested in helping our child get better, I have comfort in knowing, WE DON'T NEED THEM!!!!!!!!

The more I know Kaiser, the more I fly back to Philadelphia.

Seriously, this came out of left field. I meant to come on here, tell you about Aviana's day at physical therapy, and share some pictures. Apparently, my subconscious brain had other plans. This is what has come out, as a result of all of the many problems I have had with some of the people at Kaiser lately.

Some of the doctors surprise me by their complete lack of care for my child. These few doctors are the ones who should care most, but sadly, don't!! I, so badly, want to burn my bridges with a few.  I have the e-mail all planned out in my head. It goes something like this....

Dear Doc~

Picture your beautiful little child. 

Now, imagine your sweet child was taken out by a car, and left immobile, and in constant need of care. 

Now, think about the level of care you have provided, and ask yourself, would you be happy with the service you have provided my child?????

I have found a new doctor.

Thanks for nothing,


I have already fired one of Aviana's doctors, as she is a complete and total waste of my time, efforts, and energy. This bitch doesn't help Aviana in any way, shape, or form. Beyond that, she doesn't have one shred of compassion, and should seriously question why it is she stays in her profession. 

The last straw for me, was when she spoke rudely to my mom at an appointment. It is one thing if you are rude to me, but if you are rude to my mom, who is just trying to help me out....then you are DONE!!

Just think, it takes a lot to offend me, or to push me to this level. I give people the benefit of the doubt, and many chances, before I ever get to this point.

Anyway, not all people at Kaiser are worthless. Aviana's physical therapist, and specialist, Dr. Durant, are heaven sent. I thank them both so very much for actually caring for our child. Beyond that, I thank them both for helping us too, and knowing we are just trying to do everything humanly possible to give our baby girl a chance!  They both treat us with compassion, respect, empathy, and above all, they do what they say they are going to do, and are very proactive in everything!

They help us with whatever it is we need help with, and are also there to cheer us on. They actually genuinely celebrate our victories with us, and that is the best feeling! 

Okay seriously, back to our regularly scheduled program....

Aviana initiates 80% of all of her steps, and walks for about 17 minutes a session ;o)


  1. Oh honey, I totally understand about Kaiser. I struggled for years to figure out what was wrong. The Kaiser docs diagnosed me with a really rare condition, but I didn't fit any of the criteria for it. I'm seeing the head of neurology over at Mercy now. His comment? "Oh, yeah. Well, they like to think "inside" the box at Kaiser. I don't think they would have found this."

    They aren't all bad. In fact, I know people that love Kaiser. When you don't fit in that box, though, it can be really tough.

  2. So sorry you are having issues with Kaiser. That just sucks!! What a relief to have The Institute Program. Love the pics of your sweet girl! Her legs are long!

  3. I love seeing her walk! I can't believe that she initiates steps.
    I would be furious with the doctors that are not helping you. You really do need to make a formal complaint. That is ridiculous, heartless, and rude. They have no business being in their profession and someone needs to hear it. It may not help you, but it will help the next family. I sound like my mom now. :) I never make complaints and she always does. But this is serious and peoples lives that they are messing with.