Monday, May 17, 2010

One Down

Dave and I decided to go snowboarding this past Sunday. In order for us to take a simple day trip to the snow, a completely orchestrated event has to take place.

We completed all of Aviana's therapy (with the exception of 42 maskings, thanks Mom and Gary) for Saturday on Friday night and her therapy for Sunday on Saturday.

We cooked all of her food for the following week on Friday, rather than Sunday. We packed Aviana and all of her glory up on Saturday night and brought her to my Mom's. Did you know Aviana comes with a meticulously detailed instruction manual =)

I had one goal for my Mom, one that I have been unsuccessfully trying to accomplish over the past week. I have come so close, but it remains just out of my reach. I knew if this goal was to be accomplished, there was only one person for the job.

I said, "No pressure Mom, but if you could feed Aviana one whole meal by mouth, I would greatly appreciate it!!"

From Tahoe, I called my Mom at about 1:20. SHE DID IT!! Her and Gary collectively fed Aviana one full meal by mouth!! I was bouncing off the car walls. I was so excited about what I had just heard. I was so excited for future feedings. My mind meal down leads to two, and then three, and then four and then NO MORE FEEDING TUBE!!!!!

Thank you both for rising to the challenge and succeeding greatly! You made my day!

Below is a re-creation of the jar that Aviana had her way with.


  1. Betweeen this and the Smile Post...WOW!!! So excited for you guys :)

  2. How exciting for you to be able to get away!!! I'm sure sometimes it feels like all of the extra effort won't pay off and make it worth the trip...but it sounds like it was!!!!!! Your mom rocks!!! :)

    Hey...I know I still haven't thanked you enough...but I am SO excited for this weekend. Lecture on Saturday and evaluations on Sunday. Only someone crazy like me would be excited about it, but I am!!! I'll keep you posted!!!

  3. That is SUCH fantastic news!!! I'm so glad you were able to get away for the day! And, I am absolutely thrilled that Avi ate a whole meal by mouth! I know how monumental that is. At this point we would be happy with 2 or 3 bites for Caden. A whole meal seems like a dream. I am so happy for you!!!

  4. Oh Jen I am so happy for you! This week has brought some awesome progress for Avi. Here's to lots more!

  5. This is wonderful news!!!! I can relate to the food issue. Natalia barely eats a 4 oz. jar of anything..processed organic food or freshly mashed. She's almost 1 and this has been an ongoing issue for months! She's only interested in nursing!

  6. WOOHOO!!!!! I am so happy that you got away for some fun time and that Aviana ate an entire meal by mouth!!! That is so Awesome! Way to go Avi!!!!

  7. Aviana! Rockin' the Meal with Grandma and Grandpa! Hope your trip went well. I am sure that gave you a joy buzz to get you down the mountain!