Sunday, April 22, 2018

Happy and Sad

Written: Late 2012

As we walk into your room and find you just the way we left you from the night before.

As we cover your sweet face with too many kisses to count.

As we change your diaper.

As we pull a cute shirt over your head and add some adorable shorts to match.

As we comb your hair into side by side buns atop your head.

As we support your wobbly neck, while carrying you down the hall for breakfast.

As we feed you bite after bite by hand.

As we clean your face, remove your bib, and position you so as not to tip or fall.

As we pick you back up and carry you to your room.

As your teeth are brushed and your braces are 1, 2, 3 strapped to each leg.

As you are carried to the garage (careful to avoid hitting your long body on walls and doorways ; )

As each strap is pulled over you and buckled into the wheelchair, off we go to the park.

As day turns to night and you are calmed, your face wiped from each seizure.

As you are bathed.

As your hair is carefully (your head is more fragile by the day) washed and dried.

As any remaining moisture is dried from each finger, toe, and crease to prevent skin breakdown.

As the pillow pet is strategically placed between your legs to prevent crossing in the night.

As books are read and twinkle turtle and little lady are illuminated.

As kisses and kisses keep coming.

We are happy to care for your every need.

While at the very same time...


1 comment:

  1. Hello my dear friend... I am so sorry I disappeared - a million excuses pop to mind but none are good enough. Reading this beautiful account of life brought back so many memories. I miss you & love you and thoughts of you have forever been in my heart