tag:blogger.com,1999:blog-968022325149168758.post6354506653846267930..comments2024-03-20T00:18:15.489-07:00Comments on The Long and Winding Road: ProjectionJenhttp://www.blogger.com/profile/02455367671890571478noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-968022325149168758.post-63930667540555149392011-09-13T12:45:04.156-07:002011-09-13T12:45:04.156-07:00It is really hard not to do this. I've heard f...It is really hard not to do this. I've heard from many people with CP: "Don't pity me!"<br /><br />Really? Cause I want pity. Pity me. <br /><br />How can I not pity my son when he cries because he can't move toward a toy he wants or put his thumb in his mouth or a million other things he's tried and failed to do while his twin brother zooms around manifesting his destiny?<br /><br />But you're right. They are much more OK than we are and it's more us who need to change instead of them.<br /><br /><a href="www.outrageousfortune.net" rel="nofollow">www.outrageousfortune.net</a>Shastahttps://www.blogger.com/profile/01013565031179610593noreply@blogger.comtag:blogger.com,1999:blog-968022325149168758.post-59475127664252289522011-09-13T11:20:32.642-07:002011-09-13T11:20:32.642-07:00I really do understand. In our case, I have a pro...I really do understand. In our case, I have a projection of EXACTLY what Cici would be if this hadn't happened - in her identical twin. As time has gone on, I've just thought of them more as Cici and Penny rather than what I think they should be doing. It's very very hard, though to wonder "if."ferfischerhttps://www.blogger.com/profile/00184449747019920745noreply@blogger.comtag:blogger.com,1999:blog-968022325149168758.post-17560734150911341882011-09-11T22:31:38.376-07:002011-09-11T22:31:38.376-07:00My heart goes out to you. I know how hard it is t...My heart goes out to you. I know how hard it is to come to this point in understanding and acceptance, but for me it was the most freeing realization for me. Once I was able to look at life through Blake's eyes, my goals for him changed. As you said, I just wanted him to be comfy, warm, to feel love, to hear beautiful sounds and to see beautiful sights. With this acceptance I was free to love Blake for exactly who he was and I didn't try to make him be what I wanted for his life. I hope you will find peace in your revelation.DDBBmomhttps://www.blogger.com/profile/07505913663934410139noreply@blogger.comtag:blogger.com,1999:blog-968022325149168758.post-80317733598296808122011-09-11T07:36:53.486-07:002011-09-11T07:36:53.486-07:00You want her to ahve all the experiances that you ...You want her to ahve all the experiances that you had that are good memories and normal experiances. I would want the same thing for her, thats just the norm. I think it sounds pretty normal to me.Leah Maya Benjaminhttps://www.blogger.com/profile/18167997949670119040noreply@blogger.comtag:blogger.com,1999:blog-968022325149168758.post-27092056605320691622011-09-10T19:29:08.717-07:002011-09-10T19:29:08.717-07:00To me, I think this is the road to acceptance. It...To me, I think this is the road to acceptance. It's the reverse of what we expect as parents, but I think that maybe in the end she will have taught you as much or more than you taught her.<br /><br />I think of many of the parents that I started working with when their little guys were 3 and the dreams they had for them then. By 13, they were more realistic about their kids which had to be extremely hard in many ways, but maybe easier in others. I remember one mom, who said to me as her son went to middle school, that the transitions were the hardest.<br /><br />I learned so much from "my parents" and I've learned so much from you. I hope someday you put this into a book so that you have an opportunity to help other parents because you certainly could.<br /><br />DixieAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-968022325149168758.post-40373285245626274752011-09-10T18:43:45.894-07:002011-09-10T18:43:45.894-07:00fantastic and insightful post. i don't know ho...fantastic and insightful post. i don't know how it felt to you when you were writing it, but as a reader it feels like one of those breakthroughs in shifting perspective that shows you that aviana might not be your typical kid, but you will take insights from raising her that may be far more profound than the typical parent can access. thank you for sharing this, it's something i think all of us can benefit from.Anonymousnoreply@blogger.com