tag:blogger.com,1999:blog-968022325149168758.post5649703381690662108..comments2024-03-18T07:25:54.726-07:00Comments on The Long and Winding Road: The DressJenhttp://www.blogger.com/profile/02455367671890571478noreply@blogger.comBlogger20125tag:blogger.com,1999:blog-968022325149168758.post-7834295702562203482014-01-10T10:34:44.730-08:002014-01-10T10:34:44.730-08:00Hi ~
I feel deeply for that family. I believe it ...Hi ~<br /><br />I feel deeply for that family. I believe it takes everyone at their own pace to come to terms with something so traumatic. I understand they are grasping at every last straw possible and don't want to let their child go, no matter what. They are trying desperately to focus on the people who are giving them hope, while shying away from the ones who are giving them anything but. <br /><br />Every family is different under dire circumstances, and I'd venture to say more often than not, when you're in it - you never know how you will act completely…even when you thought you would.<br /><br />For our family, quality of life is everything. All of Aviana's CT scans were looking horrific. We were not going to continue with her life. She was not brain dead, but still it was all bad. Still we were not going to continue as for us…that was no life for her. They were trying to get her stable enough to complete an MRI. They finally did. We thought it would confirm further what the CT scans were showing. We thought we were going into the family meeting to let her go. We went in and her doctors said the damage wasn't what they thought it would be. I asked for a scale of 1-10. The UCD doctors said the damage was a 3 and we needed to continue, to give her a shot, so we did. They put her skull back together and sent us to Kaiser. The Kaiser docs took one look and said her whole brian was stroked (excluding brain stem). Still not brain dead. We trusted UCD more and continued. Once we knew she had no quality, we knew what we had to do once again….for our family. This was no life for Aviana, she was a mere shell of who she used to be, and could not interact in anything.<br /><br />Every family is different, what is acceptable. The amount of closure they need. For Jahi, this may be the time they need for closure, to come to terms. I feel so very, very, sad for all they have been through and all they will continue to go through. With each new article…my whole heart goes out to them. It's the hardest thing to let your child go…no family should have to…so however they are managing - so be it. It's their way of getting through a rough situation. Jahi is okay. Let them be too, if this is the way they choose - so be it. Peace be with them ❤Jenhttps://www.blogger.com/profile/02455367671890571478noreply@blogger.comtag:blogger.com,1999:blog-968022325149168758.post-37640796751700242252014-01-09T08:42:02.734-08:002014-01-09T08:42:02.734-08:00The way you care for Aviana is evident in every li...The way you care for Aviana is evident in every little moment you have ever had with her. Knowing you took such delicate care of every tiny detail of her last moments to make it precious, special and blessed... well, I am in tears and don't have any words to say. Aviana will always be so very lucky to have been with her mommy and daddy until the very last moment... no detail overlooked. Loved every millisecond of every minute. <br /><br />Hugs, thoughts, prayers always.Sarahhttps://www.blogger.com/profile/05748280883860444530noreply@blogger.comtag:blogger.com,1999:blog-968022325149168758.post-62701648346884112014-01-06T21:27:13.100-08:002014-01-06T21:27:13.100-08:00So beautiful Jen...love and hugs.
StaciSo beautiful Jen...love and hugs. <br />StaciAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-968022325149168758.post-50271726078315562702014-01-06T09:20:00.964-08:002014-01-06T09:20:00.964-08:00My damn computer won't let me correct typos. S...My damn computer won't let me correct typos. Sorry! :)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-968022325149168758.post-57911930862971947122014-01-06T09:19:18.486-08:002014-01-06T09:19:18.486-08:00Sorry computer keeps freezing, on the jai mcmath c...Sorry computer keeps freezing, on the jai mcmath case. It won't let me go back on correct, I meant jahi. I feel her parents are wrong. Her case is sooooo severe but I'm not in her shoes so even though I think she's in denial thinking with her heart not her brain, I'm spurious to know what you think, you're much much informed than I am to speak on it. Thanks and wishing you the best always :)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-968022325149168758.post-12471830376552108002014-01-06T09:12:58.588-08:002014-01-06T09:12:58.588-08:00Beautiful post as usual. :)
Jen, every time I go ...Beautiful post as usual. :)<br /><br />Jen, every time I go on cnn there is another update on theAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-968022325149168758.post-30419980309155552502014-01-04T18:16:46.283-08:002014-01-04T18:16:46.283-08:00I too have no words. I was reading this post on m...I too have no words. I was reading this post on my phone, sitting on the couch with my family, when I read how her body was wrapped in a blanky, and so caringly taken, and I started sobbing. It's taken me days to be able to comment. These details are heart wrenching, and how you are able to express them is so beautiful.<br />Much love your way.Chelsyhttps://www.blogger.com/profile/11700524995381624563noreply@blogger.comtag:blogger.com,1999:blog-968022325149168758.post-56023896666936430442014-01-03T01:54:14.232-08:002014-01-03T01:54:14.232-08:00I've been trying to figure out what to say to ...I've been trying to figure out what to say to this post. It hit mom like a ton of bricks. It haunted her for days. Your way of weaving simple words into a rich tapestry filled with color and emotion is unlike any other. The love, strength and togetherness just shines right through like a soft spotlight; very clearly there but not blindingly annoying. <br /><br />We all love you so much and I'm so damn PROUD of you both for listening to Aviana and letting her have the final say. I can't begin to imagine how you felt watching that man drive away with her yet like you said, her body was being driven away but her soul was already free. Did you feel any closure? Cameohttps://www.blogger.com/profile/04815107970059019435noreply@blogger.comtag:blogger.com,1999:blog-968022325149168758.post-22035555470855215562014-01-03T00:30:58.282-08:002014-01-03T00:30:58.282-08:00Just thinking of all of you will thinking about 20...Just thinking of all of you will thinking about 2014. Praying for a joy that is heaven sent to infect your entire life. God Bless you all. WONDER ME THIS LANDhttps://www.blogger.com/profile/00588686125206924940noreply@blogger.comtag:blogger.com,1999:blog-968022325149168758.post-35070202091675871522014-01-02T11:23:38.175-08:002014-01-02T11:23:38.175-08:00You are a wonderful mother. Dave is a wonderful f...You are a wonderful mother. Dave is a wonderful father. Ya'll are such wonderful human beings. I wasn't online but I was thinking of you and your family during the holidays. Avi looks so sweet and beautiful in her dress. I love you!<br /><br />Channenoreply@blogger.comtag:blogger.com,1999:blog-968022325149168758.post-40126434329696129482013-12-31T18:47:16.506-08:002013-12-31T18:47:16.506-08:00I am so sorry for your loss. Thoughts and prayers ...I am so sorry for your loss. Thoughts and prayers with you....<br /><br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-968022325149168758.post-38288985011416783592013-12-31T15:50:13.215-08:002013-12-31T15:50:13.215-08:00Thank you for sharing such personal and beautiful ...Thank you for sharing such personal and beautiful details of your family story. Thinking of your family always. Many blessings, Melissa Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-968022325149168758.post-82737147891190449672013-12-31T14:20:24.630-08:002013-12-31T14:20:24.630-08:00tears because life is not fair, as most people kno...tears because life is not fair, as most people know. Glad you had such a wonderful hospice team, I cannot imagine them leaving with her, but how wonderful the way they did it. Take care.Leah Maya Benjaminhttps://www.blogger.com/profile/18167997949670119040noreply@blogger.comtag:blogger.com,1999:blog-968022325149168758.post-44751253993678560932013-12-30T22:56:38.015-08:002013-12-30T22:56:38.015-08:00Jen, I feel such sadness when I read your post ,ye...Jen, I feel such sadness when I read your post ,yet some joy in knowing you were surrounded by people that gave you comfort and supported you in all your decisions you made with Avis care,up to the very end.<br />Every picture I see of Aviana , I'm in awe, she has such an angelic look about her. Wishing you and your family lots of love throughout the new year but most of all peace knowing that Aviana is one of Gods most beautiful angels that touched so many ,because you shared her with us. <br />Love,XOXO<br />Cindy in nc<br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-968022325149168758.post-75785486747710194052013-12-30T18:43:13.461-08:002013-12-30T18:43:13.461-08:00sitting here spilling tears for you.
Jesssitting here spilling tears for you.<br />JessAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-968022325149168758.post-6355003794923062352013-12-30T11:11:58.154-08:002013-12-30T11:11:58.154-08:00Beautiful. I have no other words for it.
--TeriBeautiful. I have no other words for it.<br />--TeriAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-968022325149168758.post-89729773256532753932013-12-30T09:30:56.193-08:002013-12-30T09:30:56.193-08:00Knowing her, knowing you, knowing Nana.....gosh Je...Knowing her, knowing you, knowing Nana.....gosh Jen, you are SO strong and have such a way with words. What a subtly beautiful photo of Avi in the white dress. I think of you all each and every day and seeing Avi's butterfly on my fridge every morning reminds me of her, her spirit, your spirit, your strength.<br />I wish you nothing but continue memories and stories of your sweet, beautiful girl as the New Year is upon us.<br />This year....I will run for Avi and as I do I will picture her running with Kama in that beautiful white dress =)MrsVhttps://www.blogger.com/profile/13998336437014750206noreply@blogger.comtag:blogger.com,1999:blog-968022325149168758.post-41624185999695340132013-12-30T01:08:38.214-08:002013-12-30T01:08:38.214-08:00I had to read this post twice. Like Dixie, I trul...I had to read this post twice. Like Dixie, I truly have no words. Lump in my throat, but no words.<br />Katrinahttps://www.blogger.com/profile/04446770591516588794noreply@blogger.comtag:blogger.com,1999:blog-968022325149168758.post-78067428749804153942013-12-30T00:45:41.459-08:002013-12-30T00:45:41.459-08:00For once, I have no words, just love.
DixieFor once, I have no words, just love.<br />DixieAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-968022325149168758.post-28304520373843360142013-12-29T23:25:58.318-08:002013-12-29T23:25:58.318-08:00Oh Jen, you are amazing. What a beautiful time. Yo...Oh Jen, you are amazing. What a beautiful time. Your family is always in my thoughts. I check on a daily basis for an update. Hoping and wishing for comfort and peace for you all. Avi was so blessed to have you as her parents. What a blessed family you have. mtvuki@gmail.comhttps://www.blogger.com/profile/15320781632984195769noreply@blogger.com