tag:blogger.com,1999:blog-968022325149168758.post4526726347178620640..comments2024-03-20T00:18:15.489-07:00Comments on The Long and Winding Road: Cone Heads Aren't Always FunnyJenhttp://www.blogger.com/profile/02455367671890571478noreply@blogger.comBlogger13125tag:blogger.com,1999:blog-968022325149168758.post-17940173316020417882012-02-02T07:15:02.878-08:002012-02-02T07:15:02.878-08:00I am so sorry to hear this. Praying for little Avi...I am so sorry to hear this. Praying for little Avi and you and your hubby. (((HUGS)))Nancy and Isaac McGeehttps://www.blogger.com/profile/05176031069784358530noreply@blogger.comtag:blogger.com,1999:blog-968022325149168758.post-62352881797927544752012-01-31T19:16:36.792-08:002012-01-31T19:16:36.792-08:00Hi Jen,
It's never easy facing the news of an...Hi Jen,<br /><br />It's never easy facing the news of an upcoming operation on your child. I'll be praying for you all. <br /><br />Carol (Philadelphia)Carolhttps://www.blogger.com/profile/15368319356088644840noreply@blogger.comtag:blogger.com,1999:blog-968022325149168758.post-87663470581437491632012-01-31T18:24:37.701-08:002012-01-31T18:24:37.701-08:00Oh that poor, sweet girl. She's been through s...Oh that poor, sweet girl. She's been through so much, as have you.Four Jordanshttps://www.blogger.com/profile/13563090187161059781noreply@blogger.comtag:blogger.com,1999:blog-968022325149168758.post-63900717420972315362012-01-31T13:50:19.458-08:002012-01-31T13:50:19.458-08:00I hate this post. Double hate this post. :( :( :...I hate this post. Double hate this post. :( :( :( :( :( <br />Everything will be fine, no doubt. But, I still hate this post. I am so sorry that you have to go through this. I hate this post. :(Tracynoreply@blogger.comtag:blogger.com,1999:blog-968022325149168758.post-60873345243410694822012-01-31T09:21:12.561-08:002012-01-31T09:21:12.561-08:00Oh man, I am so so sorry that this has come up.Oh man, I am so so sorry that this has come up.Channenoreply@blogger.comtag:blogger.com,1999:blog-968022325149168758.post-47882650676571954512012-01-30T12:34:29.293-08:002012-01-30T12:34:29.293-08:00Well! :( That just totally is unfair. I thought ...Well! :( That just totally is unfair. I thought I was just being shallow about the impending loss of hair (what I call the Children's Hospital haircut), but I'm glad to see I'm not the only one who sees that as the ultimate unfairness. I hate surgery, but I trust the neurosurgeons and the anesthesiologists who routinely operate on children to be good at their job, but still, it just sucks! I feel like Aviana has been through "enough". I don't know what the definition of "enough" is, but I think I know it when I see it.<br />Love and hugs to you....all of you!<br />DixieAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-968022325149168758.post-68600311981063341792012-01-30T12:22:16.400-08:002012-01-30T12:22:16.400-08:00Oh, Jen :(
This is so hard. It's so hard and ...Oh, Jen :(<br />This is so hard. It's so hard and so very unfair that our girls can't just have THE accident be the end of it, you know? As if that day and the aftermath weren't bad enough, but then these things pop up to remind us that it's never over. Over here, we were going along just fine....the accident behind us, and Audriana improving in small little steps along the way. And some 11 years after her accident she starts having seizures. I was like, What The Heck?!! Are you kidding me? There's MORE to deal with? Now she's on meds for who knows how long. And she has quite a big "dent" on the left side of her forehead. It wasn't always there, but slowly over the years it has gotten deeper and more pronounced. Her neurologist doesn't seem too concerned. She doesn't have screws or plates in her head, but the material that they used to patch her up was supposed to dissolve into her bone. I'm wondering what went wrong with that because she sure does have a dent! And it wasn't like that the first few years after her accident. <br /><br />I'm so sorry Avi is having this problem with her plates. It's so unfair! Now, while this may seem petty on my part, but I'm thinking OH NO! They will have to shave her head for the surgery!! Of course that's trivial compared to the seriousness of her skull, but her hair is gorgeous! Too pretty to shave away. I wish there was another way to fix those shifted plates without messing with the hair!Katrinahttps://www.blogger.com/profile/04446770591516588794noreply@blogger.comtag:blogger.com,1999:blog-968022325149168758.post-13886474738575308042012-01-30T06:57:11.760-08:002012-01-30T06:57:11.760-08:00Oh Jen, my heart just aches for you. I know how sc...Oh Jen, my heart just aches for you. I know how scary it must be. Especially to have to deal with more surgery. A year after Jimmy had his plate put it, he felt as though two of the screws were going to come through. Though the doctor said it was just his head and brain "settling" we went through all kinds of testing including a digusting bone scan test. Fortunately, the doc was right in our case it was just settling and would go no further. Scared the beegeez out of us. It still scares jimmy, when he has pains there he'll still ask me, "look and see if you can see my screws" - Such a miracle what medicine can fix, but then add a whole other element of fear. I'm sorry that Avi's plate has to be fixed, I'm sure she will be fine, but I know the last thing you want to deal with is this. <br />Love you, big, huge, hard hugs.<br />JessAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-968022325149168758.post-61010399825104664292012-01-29T23:10:50.595-08:002012-01-29T23:10:50.595-08:00awww sweet avi.....no boneheads are NOT always fun...awww sweet avi.....no boneheads are NOT always funny. <br /><br />i totally understand about the veil.... i spend the better part of year under it when we were taking care of my dad. it's how we cope and get through 'each' next step.....<br /><br />from the sounds of this, while definitely serious, the doctor doesn't seem to feel URGENT about the situation. and not feeling urgent is a good thing! <br /><br />you and dave and your entire family will advocate and cheer her on and sweet avi will continue to teach you about strength and fighting against the odds to be her very best <br /><br />me ke aloha pumehanaLoveJudiannehttps://www.blogger.com/profile/04786974349181170539noreply@blogger.comtag:blogger.com,1999:blog-968022325149168758.post-52707402786816890792012-01-29T21:34:45.702-08:002012-01-29T21:34:45.702-08:00I'm so sorry to read this and can only imagine...I'm so sorry to read this and can only imagine the fear of not really wanting to find out what was going on under hear gorgeous hair. I will pray for your sweet Aviana, and for you and Dave, as you see her through this surgery. I'm very sorry about her beautiful hair, also. Knowing your classy style, though, I know you will find some very creative ways to keep Avi looking very adorable in hats, bows, and headbands...because that's what you do...the very best for your daughter. That's not to try to sound that I don't realize the seriousness of the situation at all. It's just to try to encourage you to know and believe that you can get through this,with God's help and the help of those who love you and your family. I know that youand Dave will help Avianna by once again being her strength and best advocates. I will be praying for strength and courage.<br />Nancy in the MidwestAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-968022325149168758.post-90119275783842977292012-01-29T21:06:16.570-08:002012-01-29T21:06:16.570-08:00crap that might have sounded like she shouldn'...crap that might have sounded like she shouldn't have the surgery, thats obviousley not what I meant, it just seems like you all have already had to go thru so much, why more? seems like she could at lest be on the other side of the odds for once.Leah Maya Benjaminhttps://www.blogger.com/profile/18167997949670119040noreply@blogger.comtag:blogger.com,1999:blog-968022325149168758.post-10251946619094452632012-01-29T21:04:57.601-08:002012-01-29T21:04:57.601-08:00I tell you seems like enough already. She has her...I tell you seems like enough already. She has her beautiful head of hair just let her keep it and no more yucky surgeries.Leah Maya Benjaminhttps://www.blogger.com/profile/18167997949670119040noreply@blogger.comtag:blogger.com,1999:blog-968022325149168758.post-27166531803097224622012-01-29T18:29:13.303-08:002012-01-29T18:29:13.303-08:00Ugh! This just sucks for you guys! I can completel...Ugh! This just sucks for you guys! I can completely and totally relate to "the veil." and honestly I'm more comfortable there. More matter-of-fact. But this is just yet another bridge you'll have to cross and I'm sure Avi will be just fine!Shauna Quinterohttps://www.blogger.com/profile/08192621405848386669noreply@blogger.com